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Ma’n H. Zawati, is a lawyer and Academic Coordinator of the Centre of Genomics and Policy at McGill University, www.genomicsandpolicy.org. Dr. Khaled El Emam, www.ehealthinformation.ca, is the Founder and CEO of Privacy Analytics, Inc, a senior investigator at the Children's Hospital of Eastern Ontario Research Institute, and holds a Canada Research Chair in Electronic Health Information at the University of Ottawa. They describe their lives and experience with family caregiving, and their work. From legal, ethical and technological perspectives, they discuss the greatest challenges that arise
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