Who Should Own Our Electronic Medical Records?
December 24, 2012
Hosted by Dr. Gordon Atherley
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Guest Information
Episode Description
Susan Eng is Vice President for Advocacy at CARP, the national, non-partisan, non-profit organization committed to advocating for social change, http://www.carp.ca/. Jeff Curtis is the Chief Privacy Officer for Sunnybrook Health Sciences Centre, a 10,000+ employee acute-care, research and teaching hospital in Toronto, www.sunnybrook.ca. They discuss the question of who, if any one, in healthcare and hospitals now owns individuals’ electronic medical records, and what ownership actually means in various healthcare situations. They highlight privacy, its meaning, and its challenges in the world of electronic medical records. They talk about the benefits that electronic medical records bring or should bring to persons with serious, medically incurable illnesses who are living at home or in the care of hospitals, and to their family caregivers. They discuss ways to help family caregivers and their family members in meeting the challenges brought to them by electronic medical records.
Family Caregivers Unite!
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Family caregivers are the people who provide care to partners, parents, children, brothers, sisters, cousins, friends, neighbors and even co-workers. They are the people who provide care when everyone else has gone home. They are the people who organize the functioning of the home for the person with special needs, and for the family as a whole. They are the coordinators of care, the managers of appointments, the preventers of loneliness, and the makers of decisions even to the point of Power of Attorney. And they are so often people who themselves are burdened with their own health challenges and who may be in only marginally better health than the persons to whom they are providing family caregiving.
Dr. Gordon Atherley
Dr Gordon Atherley holds the British equivalent of the Canadian PhD and MD degrees, and LLD, Honoris Causa, from Canada’s Simon Fraser University. His awards include Fellow of the Royal Society of Arts, UK. His medical specialties are occupational medicine and public health.
As first President and Chief Executive Officer of the Canadian Centre for Occupational Health and Safety, the Canadian equivalent of the US National Institute of Occupational Safety and Health, he led the creation of Canada’s electronic information service in occupational health and safety, now used in more than 40 countries.
In academia, he held senior, tenured, full-time positions, including departmental chair, in university faculties of physics, engineering, and medicine. He is the author of a textbook and numerous articles and publications.
Since retiring from medical practice, he’s built up Greyhead Associates, which critically researches the safety, effectiveness and fairness of health services for persons with special needs.
Through Virtual Care International, a company of which he’s President, he’s involved in providing sensible technology to family caregivers to help them with their responsibilities, workloads, and concerns.
Now an activist, he urges family caregivers to unite because, more and more, it’s not just their families who depend on them, it’s also the healthcare system as a whole, as it struggles to meet more and more needs of more and more people.
