Privacy and the Family Genetic Inheritance
June 10, 2013
Hosted by Dr. Gordon Atherley
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Guest Information
Episode Description
Ma’n Zawati, LLB, LLM, is a lawyer and Academic Coordinator of the www.genomicsandpolicy.org at McGill University. He shares his personal story, describes his research and work as a lawyer, and explains the Centre’s research regarding family genetic information. He discusses protections provided by privacy and security laws against theft and disclosures of our genetic information that could be harmful to us. He suggests ways in which the principles underpinning laws could be improved so our genetic information and that of our families can be better protected. He says what more he wants to do and see done by governments to improve laws to protect against abuse of our and our families’ genetic information. He says what more help is needed by individuals and their families so they can understand and speak about their fears of the risks of abuse of their genetic information. He shares his message for family caregivers.
Family Caregivers Unite!
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Family caregivers are the people who provide care to partners, parents, children, brothers, sisters, cousins, friends, neighbors and even co-workers. They are the people who provide care when everyone else has gone home. They are the people who organize the functioning of the home for the person with special needs, and for the family as a whole. They are the coordinators of care, the managers of appointments, the preventers of loneliness, and the makers of decisions even to the point of Power of Attorney. And they are so often people who themselves are burdened with their own health challenges and who may be in only marginally better health than the persons to whom they are providing family caregiving.
Dr. Gordon Atherley
Dr Gordon Atherley holds the British equivalent of the Canadian PhD and MD degrees, and LLD, Honoris Causa, from Canada’s Simon Fraser University. His awards include Fellow of the Royal Society of Arts, UK. His medical specialties are occupational medicine and public health.
As first President and Chief Executive Officer of the Canadian Centre for Occupational Health and Safety, the Canadian equivalent of the US National Institute of Occupational Safety and Health, he led the creation of Canada’s electronic information service in occupational health and safety, now used in more than 40 countries.
In academia, he held senior, tenured, full-time positions, including departmental chair, in university faculties of physics, engineering, and medicine. He is the author of a textbook and numerous articles and publications.
Since retiring from medical practice, he’s built up Greyhead Associates, which critically researches the safety, effectiveness and fairness of health services for persons with special needs.
Through Virtual Care International, a company of which he’s President, he’s involved in providing sensible technology to family caregivers to help them with their responsibilities, workloads, and concerns.
Now an activist, he urges family caregivers to unite because, more and more, it’s not just their families who depend on them, it’s also the healthcare system as a whole, as it struggles to meet more and more needs of more and more people.
