Government Spying and Genetic Information Privacy
January 13, 2014
Hosted by Dr. Gordon Atherley
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Guest Information
Episode Description
Micheal Vonn, a lawyer and the Policy Director of the British Columbia Civil Liberties Association, http://bccla.org/, talks about her choice of civil liberties and human rights for her career. She explains the liberties and rights declared for Canada and for the USA. She discusses circumstances in which loss of privacy of genetic information would undermine the human rights and civil liberties of an individual and the individual’s descendants, parents, siblings and genetic relatives, and the circumstances that loss of privacy could become government spying or prying. She highlights the ways in which genetic information privacy could be protected. She says what she would like to do and to see done to increase protection of genetic information privacy in North America. She shares her message for individuals and families about protection of their genetic information, and says whether she would encourage them to take notice of the work of the British Columbia Civil Liberties Association.
Family Caregivers Unite!
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Family caregivers are the people who provide care to partners, parents, children, brothers, sisters, cousins, friends, neighbors and even co-workers. They are the people who provide care when everyone else has gone home. They are the people who organize the functioning of the home for the person with special needs, and for the family as a whole. They are the coordinators of care, the managers of appointments, the preventers of loneliness, and the makers of decisions even to the point of Power of Attorney. And they are so often people who themselves are burdened with their own health challenges and who may be in only marginally better health than the persons to whom they are providing family caregiving.
Dr. Gordon Atherley
Dr Gordon Atherley holds the British equivalent of the Canadian PhD and MD degrees, and LLD, Honoris Causa, from Canada’s Simon Fraser University. His awards include Fellow of the Royal Society of Arts, UK. His medical specialties are occupational medicine and public health.
As first President and Chief Executive Officer of the Canadian Centre for Occupational Health and Safety, the Canadian equivalent of the US National Institute of Occupational Safety and Health, he led the creation of Canada’s electronic information service in occupational health and safety, now used in more than 40 countries.
In academia, he held senior, tenured, full-time positions, including departmental chair, in university faculties of physics, engineering, and medicine. He is the author of a textbook and numerous articles and publications.
Since retiring from medical practice, he’s built up Greyhead Associates, which critically researches the safety, effectiveness and fairness of health services for persons with special needs.
Through Virtual Care International, a company of which he’s President, he’s involved in providing sensible technology to family caregivers to help them with their responsibilities, workloads, and concerns.
Now an activist, he urges family caregivers to unite because, more and more, it’s not just their families who depend on them, it’s also the healthcare system as a whole, as it struggles to meet more and more needs of more and more people.
