Data Ethics in Medical Research and Health Care UK-Canada Compared
June 2, 2015
Hosted by Dr. Gordon Atherley
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Guest Information
Episode Description
Micheal Vonn is a lawyer and the Policy Director of the British Columbia Civil Liberties Association, https://bccla.org/. She explains how civil liberties relate to ethical principles, governance, and harms in medical research. She references the UK’s Nuffield Council on Bioethics’ Report, bioethics@nuffieldbioethics.org, published February 2015, which recognizes how developments in data science and computing challenge conventional approaches to governance of data used in medical research. She discusses the challenges to civil liberties created for individuals who are the subject of medical research in Canada. She comments on the effectiveness of Canada’s efforts to respond to the challenges. She says what more she would like to do and see done to advance the civil liberties in Canada of individuals who are the subjects of medical research. She comments on the value of archiving the experience of Canadians regarding their civil liberties in medical research
Family Caregivers Unite!
Archives Available on VoiceAmerica Variety Channel
Family caregivers are the people who provide care to partners, parents, children, brothers, sisters, cousins, friends, neighbors and even co-workers. They are the people who provide care when everyone else has gone home. They are the people who organize the functioning of the home for the person with special needs, and for the family as a whole. They are the coordinators of care, the managers of appointments, the preventers of loneliness, and the makers of decisions even to the point of Power of Attorney. And they are so often people who themselves are burdened with their own health challenges and who may be in only marginally better health than the persons to whom they are providing family caregiving.
Dr. Gordon Atherley
Dr Gordon Atherley holds the British equivalent of the Canadian PhD and MD degrees, and LLD, Honoris Causa, from Canada’s Simon Fraser University. His awards include Fellow of the Royal Society of Arts, UK. His medical specialties are occupational medicine and public health.
As first President and Chief Executive Officer of the Canadian Centre for Occupational Health and Safety, the Canadian equivalent of the US National Institute of Occupational Safety and Health, he led the creation of Canada’s electronic information service in occupational health and safety, now used in more than 40 countries.
In academia, he held senior, tenured, full-time positions, including departmental chair, in university faculties of physics, engineering, and medicine. He is the author of a textbook and numerous articles and publications.
Since retiring from medical practice, he’s built up Greyhead Associates, which critically researches the safety, effectiveness and fairness of health services for persons with special needs.
Through Virtual Care International, a company of which he’s President, he’s involved in providing sensible technology to family caregivers to help them with their responsibilities, workloads, and concerns.
Now an activist, he urges family caregivers to unite because, more and more, it’s not just their families who depend on them, it’s also the healthcare system as a whole, as it struggles to meet more and more needs of more and more people.
